Update on this crazy journey of mine. Today I met with a dietitian.
History of Illness
If you are new to this or don’t know what has been going on, I’ll summarize.
On Saturday, May 23, I went to the ER with what I thought was an ileostomy blockage. I’ve had a few and thought this would be no different. Well, I was wrong. They did some blood tests, took a CT scan, and asked some questions. They determined I have a parastomal hernia that causes blockages. The surgeons at UNM can’t operate on anyone with a BMI over 35 because they have a policy and because it is too risky. Things like anesthesia and bleeding risks are the reason for this policy.
I was told that I would have to get weight loss surgery, which was the next step in my weight loss journey. I was on the Ketogenic diet for 8 months. I met with Dr. Gomez at Mountain View Wellness Center. She was amazing and helpful. Even though I was following the diet consistently, I was told some patients struggle to lose weight. So, after looking at my health issues, risks, and options, we decided the next step would be surgery. So, this news to see the surgeon wasn’t new nor was it unwarranted. I’m just under 5′ 3 and I weigh 290 lbs. I’m obese and have been most of my adult life. Needless to say that my BMI is not under 35.
So, I have been put on a liquid diet until I can see the weight loss surgeon in Albuquerque. My appointment with Dr. Bock is on July 2. Until then, my doctors are trying to manage my situation. My primary, Dr. Rosales, referred me to the dietician to make sure that I’m not losing weight too quickly and ensuring my nutrients are balanced.
If you need to go way back, I was diagnosed with Crohn’s Disease in 2016. I had been dealing with symptoms for two years before getting with the right doctors. Once I did, there was a world of information, tests, medications, side effects, weight gain and loss, procedures, and surgeries. To date, I have had 8 surgeries in my life. Aside from the two C-sections that resulted in my beautiful children, the rest were due to my illness.
I don’t have a gallbladder, colon, rectum, or anus. All of these organs were removed due to my Crohn’s disease. It left me with a permanent ileostomy bag. I manage it quite well, most of the time. This hernia obviously has thrown a wrench into the mix.
Today, I met with Dr. Mendoza at Memorial Medical Center. Let me tell you, he tried to help me but there wasn’t anything he could really do. Other than tell me the nutritional facts on foods, which I already know how to read, and tell me that I’m already doing what I can do, it was a pretty pointless meeting. I have to drink keto shakes for breakfast (I’ve been doing so for some time). I drink 3 ensure drinks a day. I’m to eat an avocado a day (for calories). I can have cottage cheese, unsweetened apple sauce, diluted cranberry juice, and almond and oat milk. That, ladies and gentlemen, will be my diet for some time.
I’m frustrated. I won’t lie, it is extremely frustrating to not be able to eat. I have to limit my activity because of standing for too long drains me. I can’t lift anything and that can be annoying. I have to have others help me do simple things. I hate feeling helpless and I hate feeling like my journey with Crohn’s is going right back to what it was. I know there is no cure, but being in remission was nice. I have to come to terms with the fact that I’m not in remission anymore, there are complications, and I have to deal with what comes next.
I am trying to hit 1,000 calories or more on the liquid diet (It’s hard!).
I’m to avoid sugar as much as possible (Not so hard).
I am to follow up with my doctor and won’t have to see Dr. Mendoza again unless I lose another 20 pounds in two weeks.
I’ll keep you updated on what comes next.